Never Was Much of a Hat Person

. . . until now.

NoHairDay

Found this cap at The M.D. Anderson Appearances Shop

Barber of Sillyville

Monday night, when I ran my hand through my hair, several strands came out. I thought I’d beat it to the punch by shaving my head.

The clipper I chose was the same one I use for shaving my legs. It has a comb attachment that looked like it would be perfect. Not. It seems my hair was too thick for it to plow through.

So I retrieved the scissors and went to town. After whacking away what I thought was sufficient, I turned on the clippers. They hardly made a dent. But I kept trying, urging them through what was left. Long story short, it was a royal mess.

Professional to the Rescue

“How hard could this be?” I asked my hairdresser the next day. We both laughed at my amateurish attempt. He took out his Official Clippers and had me looking presentable in no time. God bless him.

Turbans

Found these turbans on  (surprise!) amazon.com.

ChemoTurbanTurq

 

ChemoTurbanBlk

They come in many colors, and I like the little side-interest fluff.

Mount Baldy

I have fantasized about this for a long time. Not cancer or chemotherapy, but ridding myself of the bother of hair care. It is so very freeing! Just slip on a cap or turban or nothing and venture forth.

Everything is Temporary

That’s my Zen thought for the day. My hair will grow back, and if the Hair Gods are listening, I’d like it to come back curly, please. Save me a fortune on permanents.

Posted in The Big C | Tagged , , , , | Leave a comment

Just How Does Chemotheraphy Work?

Mitosis

This is one cell dividing into two cells. The Cleavage Furrow is the point where the cell will separate.

The dark purple squiggles are the chromosomes. On those chromosomes are many genes, and it is the gene that gets the blast of poison.

Normal Growth

Dividing cells is how we grow. Once we reach adulthood, however, most cell division stops. That is, unless cells need to repair damage. Then, they swing into action and divide again, making new cells to replace the damaged ones.

Cell Division Run Amok

Cancer cells, on the other hand, divide constantly. Too many unnecessary cells create a lump or tumor. Tumors can interfere with body systems and can release hormones that alter body function. They invade and destroy healthy cells. They are the Unwanted Guest.

Chemotherapy Targets Rude, Presumptuous CellsBaker County Tourism - basecampbaker.com 907

In chemospeak, “presumptuous” means “dividing.” If a cell is growing and dividing, it now has a bull’s eye painted on its tiny little face.

This is good because the cancer cells deserve to be vaporized.

However, some normal cells continue to divide, replacing damaged cells. These include: skin (and nails), bone marrow, hair follicles and lining of the digestive system. Regrettably, these get swept up in the Chemo Round-Up.

Why More Than One Drug?

Different drugs target different stages of cell division. That’s why using a cocktail of two or more drugs is employed. It’s the shotgun-style of attack. I like this strategy.

Good News

Healthy tissues bounce back after chemo stops. Cancer cells, not so much. Once they’re zapped, they can’t renew.

For more information, see How Chemotherapy Works.

Countdown

So chemotherapy is a necessary evil. I can’t wait to be rid of the treatments and am checking them off the list.

One down, five to go.

photo by: Base Camp Baker
Posted in The Big C | Tagged , | Leave a comment

I Am Thankful For . . . Family

February 23, 1917This isn’t my family, but it serves the purpose well enough. My mother and father did their best for us, and it was pretty darn good. We knew what love was and felt it every day.

One of my favorite stories is about my father urging my mother not to buy us toys every time we went to town with her. Money was tight, plus I wonder if he believed children should not get everything they wanted.

Of course, the day came when we went to town with him. As we waltzed in the door with our newly-purchased treasures, only a glance passed between the two of them.

Not too many relatives left now, though. Mother and Daddy have gone on, as have aunts, uncles and cousins.

My brother, sister, cousin and I stay in touch. I’d rather have three or four present relatives than 10-20 distant ones.

We visit and call enough to reassure that we still belong. Not too many constants in life, but family is one.

Posted in Thankfulness | Tagged , | Leave a comment

No Extra Points For Suffering

NoSuffering

There are no extra points for suffering. Thus spake a certain M.D. Anderson doctor I was privileged to meet.

No need to continue in discomfort when an alternative is available.

More Drugs

Yeah, I hear, “That’s just adding more drugs!”

Well, I guess since I’ve consented to having three powerful poisons (Taxotere, Adriamicyn and Cytoxan) pumped into my heart, I’m not going to quibble about an extra pill or two to counteract their awful side effects.

If I were so opposed to chemicals in my body, don’t guess I’d be doing this whole chemo thing.

Nausea

A few days ago, I was nearly incapacitated by nausea. Thank God, there was an alternative. The Compazine was not strong enough, but (generic) Zofran did the trick. Taking them both seems to cover all bets.

I do admit I don’t like taking lots of pills. But I don’t like nausea even more.

Pharmaceutical Industrial Complex

Not sure that’s a thing, but even if the motives of the researcher/developer/drug company are not pure, they do want something that works. Horrific side effects are not desired by anyone. The most effective, least objectionable drug wins.

Of course, there are crazy people who try to hide clinical trial data, but that’s a whole other discussion.

You Pays Your Money, and You Takes Your Chances

Life is pretty much a crap shoot, anyway, though. Isn’t it? You research as much as possible, weigh the alternatives, decide on a course of action, and then commit to it. You do the best you can.

Modern Medicine

So I have placed my trust in research-based science. No, it’s not infallible, but what is?

Maybe if I were in a God Hospital, there wouldn’t be a worry. But why would there be a God Hospital at all?!

Sorry, Alternative Medicine Proponents, but when it comes to cancer, we need the Big Guns. Garlic and honey may be fine for a sore throat, but cancerous cells that are gobbling up prime real estate require the anti-tank weapons available only in the traditional medical arsenal.

No knives for this gun fight.

Posted in The Big C | Tagged , , | Leave a comment

Fiber Fiber Fiber

Canning Jar Oatmeal

Constipation is the pits. YUK.

Unfortunately, it can result from the chemo and side-effect-prevention drugs.

Fiber should be added gradually if you’re not accustomed to it. Here are Livestrong’s Guidelines for Adding Fiber. This is a helpful list of fiber-rich foods.

kelloggs-raisin-bran-400x400

 

A favorite evening snack is Raisin Bran. I add a handful of walnuts for extra nutrition.

 

 

Apricots and Prunes

Plumped prunes and apricots are easy and YUM. Add a little water and microwave for one minute. Allow to cool a bit, and eat warm.

Usually two to four prunes per day is good. Consider them dessert.

Fiber Supplement

I also add the H-E-B Fiber Supplement to my daily water ration: 3 teaspoons per quart per day. (It is the generic equivalent of Benefiber.)

It’s 100% wheat dextrin — Gluten free. Sugar free. Flavor free. Dissolves completely in beverages. 0 net carbs.

Happy ThanksgivingVegetables and Fruits

Of course, veggies and fruit should contribute the bulk (!) of your daily fiber. However, when your appetite is not so hot, these other options provide an alternative.

Too, sometimes the fruit is too acidic for a tender mouth, so it’s great to have other choices.

dry bean mixBeans and Legumes

Lastly, beans and legumes are loaded with fiber. Consider their protein, too, and they’re a good choice. I haven’t had a yearning for these yet, but if I do, I know they will be beneficial.

 

Ice in a drink glassWater

And, as my cousin rightly reminded me, DRINK PLENTY OF WATER while adding fiber. You don’t want a clogged-up mess.

The reason fiber is good is that it absorbs liquid and moves food along the digestive tract. Just be sure to provide plenty of that liquid — 8 glasses at least.

Posted in Constipation, Recipes / Nutrition, The Big C | Tagged , , | Leave a comment

How To Eat Mashed Potatoes and Still Lose Weight

mashed taters

First, get cancer. Then stay nauseated. When you finally do eat, keep portions reasonable (small-ish).

So happy to have my old favorite back on the menu!

When I learned I had diabetes a few years ago, these were banished from my consideration. Now, though, with the diabetes well under control and my appetite diminished, I find I’m able to enjoy these once again . . . in moderation. Something not possible heretofore!

Broccoli

Broccolli doesn't grow on trees, you knowMy new best friend. Its antioxidant properties are legendary. Plus its fiber increases its value.

So I try to lightly steam five or six florets (one minute in the microwave) for each lunch and dinner. Seasoned with salt and lemon juice, it’s pretty good.

Never a favorite, if I reward myself with a bite of potato or chicken for each bite of broccoli, I can get it down.

Weight Loss

Have lost 2-1/2 pounds in the week since the first chemo treatment.

However, I’m about ready to trade in this new diet for one that allows for a normal appetite . . . and, yes, maybe even some weight gain. I’ve discovered there are worse things.

 

Posted in Recipes / Nutrition, The Big C | Tagged , , , | Leave a comment

Chemo Delivery, Fast-Food Style

PortSize

Why a Port?

The advantages of having a port implanted under the skin are to (1) dispense with the necessity of poking around the hand to find a suitable vein, (2) allow for blood drawing and (3) prevent the collapse of small veins not capable of withstanding the amount of chemicals needed.

So I was most agreeable to this procedure. My port is about an inch in diameter and hardly noticeable. It’s positioned about three inches below the collarbone.

The incision was sore only a couple of days, and I can now sleep on that side with no problems.

PortSideView
Here’s what it looks like in a side view. There’s a little “stick” when they insert the needle which pierces the skin only.

So that’s a tremendous time- and pain-saver.



The Catheter Goes Where?!

A PortB Catheter (tubing)C Subclavian veinD Superior vena cavaE Pulmonary veinF AortaG Heart

A Port
B Catheter (tubing)
C Subclavian vein
D Superior vena cava
E Pulmonary vein
F Aorta
G Heart

I was quite surprised to discover that the chemo port’s tube is threaded into the superior vena cava (D on the diagram). That’s just centimeters from the heart (G)!

My original understanding was that it was just inserted into a vein, which the vena cava is, but I didn’t know it went so close to the heart.

The nurse explained this was so because the heart could WHOOSH out the chemo more quickly and efficiently. Well, yeah.

My heart will be monitored during treatment to determine how it’s being affected. Hopefully, no permanent damage will occur.

Pray ‘em if you got ‘em.

Seriously, I would appreciate your prayers.

Posted in The Big C | Tagged , , , , | Leave a comment

Superhero Superformula

SuperFormulaI want one of these!

The A. C. Camargo Cancer Center in São Paulo is wrapping chemo pouches with these covers to make treatment a little less scary for kids. Comic books that depict Superheroes’ being healed by the Superformula are meant to provide hope and inspiration.

Couldn’t hurt, huh?

Read more about the A. C. Camargo Cancer Center in São Paulo.

Posted in The Big C | Tagged , | Leave a comment

The Littlest Vegetarian

spring vegetables scYes, I know many babies are vegetarian, but Luiz Antonio has chosen this on his own. Watch this little boy discover where meat comes from.

 Vegetarians

Have you ever noticed how many shoppers in a health food store look pale and thin and kinda hollow-eyed?

I started shopping for health food after reading Adelle Davis’ Let’s Eat Right to Keep Fit, published in 1970. Looks like it’s out of print now, but the principles are still around. It was the first I ever heard of whole grains. We were Wonder Bread kids. And yogurt — sounded strange that soured milk was good for you.

Then came Diet for a Small Planet in 1971. These books fascinated me, and I began to consider changing my diet.

I’ve tried, more than once, to reduce meat consumption and incorporate soy. But soy “cheese” doesn’t melt and doesn’t taste good. Miso nauseates me. Tofurkey? No furkey way.

So my efforts have been less than stellar. However, I do love beans and eggs and nuts and vegetables and fruits. So I try to incorporate more of them while phasing out the meat.

Meat-Eaters

When I hear “meat-eaters,” first thing I think of is Bubba, happily chomping on fried chicken while surveying the array of fried, white-flour, sugar-laden indulgences before him. I was raised at that table, and rejecting all that splendor has been downright painful.

Even knowing the consequences of this kind of diet (heart disease and obesity) has not made the transition easy.

Food Isn’t Fun Anymore

I guess my point is that I’m sad that food selection has become a minefield. Carcinogens, pesticides, chemical fertilizers, mercury, trans fat, saturated fat, cholesterol, monoglyderides, polyglycerides, sugar, artificial sweeteners, high fructose corn syrup, GMO — the list is never-ending. Gone are the days we could just sit down and enjoy a meal.

And forget about restaurants. Is this lettuce clean? Can my server read AND HEED the signs in the bathroom to wash his/her hands? And don’t get me started on smearing tables with a dirty rag instead of actually cleaning them.

I miss the days of carefree eating.

photo by: Muffet
Posted in Recipes / Nutrition | Tagged , | Leave a comment

Greetings from Chemo Land

photo(2)

My first day of chemo. I’m smiling because that’s saline dripping from the bag. Saline = good.

ChemoTree

My Room

Can’t beat that view, can you?

The visitor’s chair was occupied briefly by the LOVELIEST volunteer ever! She was a breast cancer survivor and cheery as all get out. Presenting me with several freebies (a neck pillow, a heart-shaped pillow to cushion my port from the passenger-side seatbelt, a crocheted cap, brochures for scarves and free cosmetics makeovers and wigs), she brightened my day.

 

ChemoTV

 

The bubbly nurse gave me a tour of the cubicle and its amenities.

TV, DVD player, magazines, semi-privacy curtain that’s rigged to close more completely with a Bible weight.

 

RedNurseButton

TV Remote / Emergency Call

 

 

The TV Remote / Emergency Call device came with explicit instructions.

The Red Button was NOT the same as a hospital nurse call button. Here, you push it only if you are in a true emergency situation: bleeding, difficulty breathing, chest pains.

If you want an extra blanket, just wait for a nurse or volunteer to walk by. You won’t be waiting long.

Froggy

 

My neighbor on the other side of the curtain had a bullfrog voice. Remember “Our Gang’s” Froggy? Sounded like him all grown up.

I didn’t mind his choice of TV programs (“Andy Griffith” and “Gunsmoke”), but they were kinda loud.

 

NOTE TO SELF

Bring headphones next time.

 

The Good Before the Bad

After the saline, which they gave to determine if the port was working properly, I received a bag of anti-nausea meds. DOUBLE-YAY. This took 20-25 minutes.

photo(8)

The Red Devil


First Cancer-Fighter

Next came the Adriamycin, aka “Red Devil.” It’s a concoction nick-named “Red” for its color (!) and “Devil” for its nasty side effects.

I can attest that it did change my urine to a cherry orange punch color, but that subsided. Small potatoes compared to the other possibilities.

Chemo Brain, another delightful prospect, is a difficulty concentrating, memory lapses, trouble multi-tasking, slower thought processing, and difficulty finding words at times. Sometimes this is temporary, but sometimes it’s long-lasting. Not appealing at all. I could always depend on my brain. If it deteriorates, I fear the essence of me will, too.

Supreme Court Says DC Gun Ban Unconstitutional

Quality of Life

If any of these side effects proves too much to bear, I will discuss other options with the oncologist. Don’t know what these will be — reduction in dosage or switching to other drugs — but this is the quality of life issue I’m ferocious about. I’m going out as me, not as a shell of me.

They can take my self determination when they pry it from my cold, dead hands.

Second Cancer-Fighter

Cyclophosphamide (Cytoxan) was administered next. Lasted only 20 minutes. I felt a slight tingling in my sinuses. Nothing bothersome.

Third Cancer-Fighter

Last came Taxotere. The possible side effects of this one were: face flushing, back pain, shortness of breath.

RedButton

These qualified as “red button issues.” If I experienced any of these, they would stop the infusion immediately.

Luckily, these passed over!

 

All in all, a very good day.

Posted in The Big C | Tagged , | Leave a comment